Länksamling

Centrum för Sällsynta Diagnoser (CSD i samverkan): https://csdsamverkan.se/

Socialstyrelsens sida om PCD: https://www.socialstyrelsen.se/kunskapsstod-och-regler/omraden/sallsynta-halsotillstand/primar-ciliar-dyskinesi/

ERN-LUNG / PCD Core: https://ern-lung.eu/ , https://ern-lung.eu/our-expertise/disease-groups/pcd-about/

BEAT-PCD: http://beat-pcd.squarespace.com/

LIVING WITH  PCD-studien: https://pcd.ispm.ch/en/

European Lung Foundation: https://europeanlung.org/en/

Bronkiektasier: https://www.europeanlunginfo.org/assets/files/pdfs/Bronchiectasis/Factsheets/Brochiectasis_SV.pdf

The International PCD Physiotherapy Network (IPCDPN): https://twitter.com/pcdphysio

PCD Research: https://pcdresearch.org

Riksförbundet Sällsynta Diagnoser: https://www.sallsyntadiagnoser.se/

GENOMIC MEDICINE SWEDEN (GMS): https://genomicmedicine.se/

Recode Therapeutics: https://recodetx.com/

Ethris: www.ethris.com

NATA: www.natahub.org