Centrum för Sällsynta Diagnoser (CSD i samverkan): https://csdsamverkan.se/
Genomic Medicine Sweden (GMS): https://genomicmedicine.se/
Socialstyrelsens sida om PCD: https://www.socialstyrelsen.se/kunskapsstod-och-regler/omraden/sallsynta-halsotillstand/primar-ciliar-dyskinesi/
ERN-LUNG / PCD Core: https://ern-lung.eu/ , https://ern-lung.eu/our-expertise/disease-groups/pcd-about/
BEAT-PCD: http://beat-pcd.squarespace.com/
European Lung Foundation: https://europeanlung.org/en/
Bronkiektasier: https://www.europeanlunginfo.org/assets/files/pdfs/Bronchiectasis/Factsheets/Brochiectasis_SV.pdf
The International PCD Physiotherapy Network (IPCDPN): https://twitter.com/pcdphysio
PCD Research: https://pcdresearch.org
Riksförbundet Sällsynta Diagnoser: https://www.sallsyntadiagnoser.se/
Recode Therapeutics: https://recodetx.com/
Ethris: www.ethris.com
NATA: www.natahub.org